One step at a time

Greetings,

Mom was not kidding he really is hooked up and monitored from here to hell! Things are looking better, he is still not ready to be released back to his floor, but they are slowing looking up. The Doctors (11 Long, ICU, AND Lung specialists) do not believe that he has an infection in his lungs which is good news. Earlier this evening he had 2 extra liters of fluids in him, so they are working on getting rid of that (he is peeing A LOT right now!) to hopefully prevent any future pulmonary edema and infection. His breathing is getting better, and his O2 levels are getting back to where they should be. They are working on weaning him down on the O2 that his is receiving, and we are working on taking ‘Big Breaths’ to hopefully have him off O2 at all. But one step at a time. They will continue to monitor his lungs to make sure that no infection develops, monitor his O2 levels to make sure they don’t drop, in addition to his overall state.

I mentioned the hallucinations to the doctor this afternoon and he said that can be a side effect of one of the drugs he is on, so they are dialing that back, and hopefully they will subside. Not gonna lie, I think part of us is sad to see them go, when he was conscious of what was happening they could be pretty funny! But if this means his inability to tell the difference goes away, we’ll take it. He is not mentioning being in pain as much, and admittedly isn’t using his pain button as often as before. Also good news. He slept for most of the day but late this afternoon we watched some TV and he sat up in bed and drank some broth. He looks better over all in my opinion, both of his 11Long doctors have mentioned that as well, and he says he feels better. We hope to have him back on his floor sometime this weekend, if all continues to improve.

GOOD NEWS: Diane’s cells are kicking butt and taking names! They are growing quite well, there are no signs of GVHD, overall they are happily nesting in their new home.

Thank you for your continued thoughts and prayers. We take each day as it comes, one step at a time, some days as you can imagine are better than others. But one of the things that continually amazes us is the number of people who are thinking of us and lifting us up, and that shines light on even the darkest of days.

Much Love,
Emily (Mom, Dad, & Tori too!)

p.s. Also for those of you that are sending him messages via the hospital link, please do NOT put his room# as L1122, there is someone else in that room now, how rude :~) You can simply put L11 (or leave it blank) and it will get to him wherever it is that he may be. Thanks! https://www.ucsfhealth.org/adult/contact/patient.html