All,
A year ago today, I went to UCSF for a routine clinic visit and ended up in the hospital. In the days that followed, I underwent too many tests to mention, then my first chemo. In the months that followed I discovered friends I didn’t realize I had. And the amount of love and support was nothing short of miraculous.
Since then, I have recovered to the point that I have to remember that I’m still years from well. My stamina has returned as well as my mobility. I am actively involved in physical therapy and I continue to improve. I have begun to play golf (infrequently) and am riding the heck out of stationary bikes. I have learned a lot about the fragility of life and am amazed at the people I know who are affected with similar life threatening diseases. All of this has taught me to appreciate the small things like sitting in the shade on a gorgeous day or dinner and a movie. Many such things are still outside the scope of my recovery, but I am constantly reminded of those less fortunate than I. At this writing, my only real discomfort is the return of mouth sores, but they are very manageable (just say no to hard crust bread!).
Today is day 277 since the transplant and we wonder if this is as good as it gets. Personally I expect it to improve. Currently I am down to 10mg of steroids. Any future reduction of immunosuppressant s will be watched very carefully as my sister’s marrow continues to learn that I am not the enemy. That process likely will take years, but I remain hopeful.
Although we have traveled a very rough rode in the last year, many are still traveling that road. Every day I am thankful for where I am and hopeful that others will recover completely. This Thanksgiving, please keep a good thought for all those less fortunate than we are. We hope your holiday is full of cheer and good will. Love to you all.
